• 04 DEC 18
    • 0

    The Pros and Cons of Patient Reported Outcome Measures (PROMs) and Patient Reported Experience Measures (PREMs) – 26 November 2018

    On Monday 26 November 110 delegates gathered at the University of Sydney to consider the pros and cons of PROMS and PREMS. The conference papers, slides and photos are available below.  Outputs from the Forum will be position statements on the issues of PROMs and PREMs for quality assurance and benchmarking; and PROMs to guide clinical care. We are also forming a PROMs/PREMs special interest groupContact Sarah Green if you are interested in being involved.

    Convenors -  Rachael Morton, Associate Professor and Director of health economics at the NHMRC Clinical Trials Centre, Sydney Medical School, University of Sydney and Tilley Pain, Principal Research Fellow for allied health professionals at the Townsville Hospital and Health Service and an Adjunct Principal Research Fellow at James Cook University.

    Download PDF Programme Download PDF Short Oral Presentations Download Presentation Slides

    (Slides for the Forum are only available to HSRAANZ Members and Forum delegates)

    This one-day forum brought together stakeholders with experience in PROMS and PREMs to advance the health services research agenda.

    During the morning delegates heard from experts in the field about the application of PROMs and PREMs in government programs, Clinical Practice, General Practice and NGOs and peak consumer bodies.

    The afternoon featured short oral presentations in two streams and provided an opportunity to learn about the latest research and leadership in the areas of PROMs and PREMs for quality assurance and benchmarking and PROMs to guide clinical care.

    The concluding break-out sessions debated the key challenges and opportunities, and where to from here.

    Plenary Speakers

    Catherine Katz – Director, Safety and Quality Improvement Systems and Intergovernmental Relations Australian Commission on Safety and Quality in
    Healthcare Australian Commission on Safety and Quality in Healthcare

    Jean-Frederic Levesque – Chief Executive, NSW Agency for Clinical Innovation

    Dominique Cadilhac –Head Translational Public Health and Evaluation Division, Stroke and Ageing Research, School of Clinical Sciences, Monash University

    Ian Harris – Professor of Orthopaedic Surgery, UNSW Sydney

    Tim Usherwood – Professor of General Practice at the University of Sydney; Honorary Professorial Fellow at the George Institute for Global Health; and Deputy Chair of Western Sydney PHN.

    Shilpa Jesudason – Nephrologist, Chair, CNARTS Clinical Research Group and Clinical Director, Kidney Health Australia

    FLYER

     

     

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Dominique Cadilhac

Professor Cadilhac heads the Translational Public Health Research Division in Stroke and Ageing Research within the School of Clinical Sciences at Monash University and is the Head of Public Health: Stroke Division, Florey Institute of Neuroscience and Mental Health. She is the Data Custodian for the Australian Stroke Clinical Registry.

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Jean-Frédéric Levesque

Dr Jean-Frédéric Levesque joined the NSW Agency for Clinical Innovation as Chief Executive in June 2017. He was previously Chief Executive of the Bureau of Health Information for four years.

Dr Levesque brings to the ACI leadership in healthcare system analysis and improvement, combining experience in clinical practice in refugee health and tropical medicine, in clinical governance and in academic research. He is a member of the Strategic Analytic Advisory Committee of the Canadian Institute of Health Information and a Fellow of the Royal College of Physicians of Canada in Preventive Medicine and Public Health. He has held senior positions responsible for publicly reporting information about the Canadian health system at the Institut National de Santé Publique du Québec and the Commissaire a la santé et au bien-etre du Québec.

Dr Levesque has a Doctorate in Public Health, a Masters in Community Health and a medical degree from the Université de Montréal, Canada. He is a Conjoint Professor at the Centre for Primary Health Care and Equity of the University of New South Wales. His research focuses on how different models of care impact on patient outcomes and experiences of care. In 2011-12, he was a Visiting Academic at the University of Melbourne.

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Ian Harris

Ian Harris is an orthopaedic clinician and researcher based in Sydney. His clinical work covers general orthopaedics but with a sub-specialty interest in trauma surgery. His academic activities are in the field of clinical research, incorporating randomised trials, systematic reviews, cohort studies and studies of methodology. He also has an interest in clinical quality registries and is Deputy Director of the AOA National Joint Replacement Registry, Co-chair of the ANZ Hip Fracture Registry and Chair of ACORN, the Arthroplasty Clinical Outcomes Registry National.

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Tim Usherwood

Tim Usherwood is Professor of General Practice at the University of Sydney; Honorary Professorial Fellow at the George Institute for Global Health; and Deputy Chair of Western Sydney PHN. His research focuses on the development and evaluation of interventions to improve health outcomes in chronic disease & primary care.

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Shilpa Jesudason

Dr Shilpa Jesudason (MBBS, PhD, FRACP) is a Staff Specialist Nephrologist and Senior Clinical Lecturer, University of Adelaide. She is a general and transplant nephrologist with subspecialty expertise in obstetric nephrology. Her primary research program investigates parenthood outcomes for women and men with renal disease. She is also Chair of the Clinical Research Group at the Royal Adelaide Hospital’s Central Northern Adelaide Renal and Transplant Service (CNARTS), which is undertaking a range of studies exploring the experience of patients with ESKD who transition to dialysis, with a focus on multidisciplinary assessments of patient reported symptoms and outcomes, and the psychosocial impact of kidney failure. She is a researcher with the NHMRC-funded BEAT CKD Research Consortium and is integrally involved in the “Consumer Engagement in Research” working group and activities of BEAT CKD as well as the ANZDATA registry. In 2017, Dr Jesudason was appointed as the National Clinical Director of Kidney Health Australia, the peak organisation representing patients with kidney disease and their communities. She has been involved in strengthening consumer engagement within nephrology via roles with the ANZ Dialysis and Transplant (ANZDATA) Registry Steering Committee, ANZ Society of Nephrology (ANZSN) Dialysis Advisory Committee, ANZSN Clinical Policy Advisory Committee, KHA-Caring for Australians with Renal Impairment (KHA-CARI) Guidelines Steering Committee. She is leading a National Community Consultation of indigenous patients and expert clinicians to inform the upcoming KHA-CARI Guidelines for the Management of CKD in ATSI and Maori, as well as a National consultation to inform KHA’s Youth Support programs. KHA has also been commissioned by the Federal Government to develop a National Strategic Action Plan for Kidney Disease, to be delivered in April 2019.

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Catherine Katz

Catherine Katz is the Director of Safety and Quality Improvement Systems and Inter-Government Relations at the Australian Commission on Safety and Quality in Health Care. Catherine is an innovative thinker, economist and analyst with outstanding strategic policy expertise at a national and state level, and quality insight into business, financial and risk governance systems in the public and private sectors. Catherine has represented Australia in various international and Asia-pacific forums, supporting other health systems develop their own safety and quality improvement systems.

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